Complex Regional Pain Syndrome

Boy, it has been a hot minute since I last posted a blog. Life has been a little hectic – I broke my foot in three places in June and noticed that my pain seemed to increase and change over time. My wonderful GP picked up that I had developed Complex Regional Pain Syndrome! In order to confirm a diagnosis and get on top of my rehab, I’ve been busy with tests and engaging with my own allied health providers. I’ve deep dived into Complex Regional Pain Syndrome (CRPS) and I’m keen to share what I’ve learned.

What is Complex Regional Pain Syndrome?

Complex regional pain syndrome (CRPS) is a form of chronic pain that usually affects an arm or a leg, but can occur anywhere in the body. It typically develops after an injury, stroke, heart attack, or surgery.

It’s uncommon and its cause isn’t entirely understood.

Symptoms vary from person to person, but may include:

·       Continuous burning or throbbing pain, usually in the arm, leg, hand or foot

·       Sensitivity to touch or cold

·       Swelling of the painful area

·       Changes in skin temperature — alternating between sweaty and cold

·       Changes in skin colour, ranging from white and blotchy to red or blue

·       Changes in skin texture, which may become tender, thin or shiny in the affected area

·       Changes in hair and nail growth

·       Joint stiffness, swelling and damage

·       Muscle spasms, tremors and weakness (atrophy)

·       Decreased ability to move the affected body part

Medical researchers and professionals believe CRPS involves nervous system inflammation and a maladaptive nervous system response after an injury. To quote my ortho ‘your nerves have gotten confused in the healing process and are interpreting all sensory input as pain’.

How is Complex Regional Pain Syndrome Managed?

The management of CRPS is complex and involves input from a Multi-Disciplinary team. Typically, the following professionals may be involved:

• Pain/Rehab Specialist Medical Officer – to review and provide oversight regarding pain management options.

• Physiotherapist – provides rehabilitation to affected limb and pain management exercises.

• Occupational Therapist – provides rehabilitation to upper limbs, provides advice regarding desensitisation,  provides accommodations and advice to support day to day functioning.

• Pain Psychologist – provides support with the mental health impacts of managing chronic pain.

• Dietician – provides input into dietary information to manage sub-acute nervous system inflammation.

• Pharmacist – provides input into vitamins/supplements that may support sub-acute nervous system inflammation.

What is it like having CRPS?

Living with consistent pain that varies in intensity has added stress to my day-to-day life. In the acute phase, I had significantly reduced mobility and functional ability. I was unable to walk more than a few steps and couldn’t watch television, scroll on my phone, or do any of the activities I do to relax.

I had managed to put together my own rehab plan prior to seeing my team of health professionals. This has allowed for some shift and I’m now able to walk longer distances, drive and do the things I enjoy. That being said, living with pain is very fatiguing and I am definitely noticing I need to preserve moments of rest throughout my day.

As I go through my rehab journey, I’m keen to share what has been helpful and unhelpful. If you’ve been impacted by CRPS, please feel free to drop a comment below about what’s been helpful for you!

Your friend in neurodivergence, development and training

Kristy

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